Version: 1.0.0 | Published: 24 Mar 2026 | Updated: 16 days ago
Summary
Description:
The dataset contains anonymised patient and public conversation which has taken place online regarding 17 cardiovascular disease areas (including: arrhythmia & tachycardia, cardiopulmonary disease and heart failure) in the UK. The dataset is segmented by cardiovascular conditions and topics conversed about such as testing, imaging and emotional impact.
Contact Point:
Health Theme:
Noncommunicable diseases – metabolic & cardiopulmonary
Health Category:
- Electronic Health Records (EHRs)
- Data on factors impacting on health, including socio-economic, environmental & behavioural determinants of health
- Data from clinical trials, clinical studies & clinical investigations
Number of Unique Individuals:
64613
Documentation
Associated Media:
on request
Documentation:
The dataset contains anonymised patient and public conversation which has taken place online regarding 17 cardiovascular disease areas (including: arrhythmia & tachycardia, cardiopulmonary disease and heart failure) in the UK. The dataset is segmented by cardiovascular conditions and topics conversed about such as testing, imaging and emotional impact.
Coverage
Spatial
Spatial Coverage:
United Kingdom
Temporal
Start Date:
01 February 2023
Frequency:
IRREGULAR
Date of First Release:
13 February 2025
Provenance
Origin
Purpose:
Research cohort
Collection Situation:
Other
Image Contrast:
Not stated
Method of Collection:
Free text NLP
Access and Governance
Usage
Data Use Requirements:
Project specific restriction
Access
Access Rights:
In Progress
Jurisdiction:
United Kingdom of Great Britain and Northern Ireland
Data Controller:
White Swan
Data Processor:
White Swan
Delivery Lead Time:
1-2 months
Legal Basis:
Project-specific restrictions
Health Data Access Body:
White Swan is a registered charity in England and Wales (1176486) improving
health and wellbeing through AI technology and analytics.
Format and Standards
Language:
English
Format:
- csv
- xlsx
- web page explorer
Conforms To:
- OTHER
- LOCAL
Coding System:
- LOCAL
- HPO
- OTHER
Data Distribution
Data Status:
Available
Distribution:
On Request, On Request
Observations
Name
Population Type
Value
Description
Variable Measured
Unit Code
Observation Date
Number of Records
Minimum Typical Age
Maximum Typical Age
Persons
64613
Persons in this dataset are determined by the unique volume of chosen display names in the data. This is calculated per source (reddit, reviews, other forums), and then totaled together. In other forums and reviews domains persons may choose to denote themselves as anonymous. In this case, anonymous users are counted once per domain. For example, on 'healthunlocked.com/vasculitis-uk'.
Unique online names indicating number of persons
01 February 2025
64613
0
112
Origin
Name:
Data Catalogue