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Version: 1.0.0 | Published: 24 Mar 2026 | Updated: 16 days ago

Ovarian Cancer

Dataset

Summary

Description:
The SONATA study helps gynaecological services to improve the care they provide to women who are undergoing investigation for possible ovarian cancer. This information will be used to help services in England, to improve the care and outcomes for other women undergoing testing in primary care for possible ovarian cancer.
Access Tier:
Controlled
Contact Point:
Health Theme:
Cancer
Health Category:
Electronic Health Records (EHRs)
Number of Unique Individuals:
41000

Documentation

Documentation:
When patients see their GPs with symptoms that might indicate ovarian cancer, a CA125 blood test is carried out but this test does not identify all patients with ovarian cancer and wrongly identifies some patients as at risk of having ovarian cancer. It is possible that this can be improved by carrying out an additional test, HE4, on the same blood sample and calculating a score called the ROMA score: this is being investigated in the SONATA study with the aim of improving ovarian cancer diagnosis.

Coverage

Spatial

Spatial Coverage:
International

Temporal

Start Date:
01 January 2000
End Date:
01 December 2024
Frequency:
STATIC
Date of First Release:
18 February 2025

Provenance

Origin

Image Contrast:
Not stated

Access and Governance

Access

Access Rights:
Information Governance and Ethics - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/information-governance-and-ethics)
Delivery Lead Time:
2-6 months
Health Data Access Body:
SDE009

Format and Standards

Language:
English
Format:
SQL
Conforms To:
LOCAL
Coding System:
LOCAL

Data Distribution

Data Status:
Not available
Distribution:
Data Request Process - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/research/data-request), Please email wmsde@uhb.nhs.uk

Observations

Name
Population Type
Value
Description
Variable Measured
Unit Code
Observation Date
Number of Records
Minimum Typical Age
Maximum Typical Age
Persons
41000
41,000 patient datasets from 3 sites nationally.
Count
20 February 2025
41000
0
0