Version: 1.0.0 | Published: 24 Mar 2026 | Updated: 16 days ago
Summary
Description:
Public Health Scotland is responsible for the collection of information on Scottish residents when they are diagnosed with malignant (and some benign) tumours.
This is a subset of data for the Brain Health Data Pilot (BHDP)
Contact Point:
Health Theme:
Cancer
Health Category:
Electronic Health Records (EHRs)
Number of Unique Individuals:
219396
Documentation
Associated Media:
Documentation:
The Brain Health Data Pilot (BHDP) project aims to be a shared database (like a library) of information for scientists studying brain health, especially for diseases like dementia, which affects about 900,000 people in the UK. Its main feature is a huge collection of brain images linked to routinely collected health records, both from NHS Scotland, which will help scientists learn more about dementia and other brain diseases. What is special about this database is that it will get better over time – as scientists use it and add their discoveries, it becomes more valuable.
This is a subset of the Scottish Cancer Registry (SMR06) dataset for use in the Brain Health Data Pilot (BHDP) project.
The registry began in 1958 collecting personal, demographic and diagnosis information (such as site, histology, behaviour, histological confirmation and hospital of diagnosis) from cancer patients. In 1997, a new electronic cancer recording system was launched and at this point the registry was extended to include extra information on tumour stage (for breast, cervical and colorectal cancer), tumour grade and treatment information. A wide variety of geographical data is also included in the dataset including Scottish Index of Multiple Deprivation and Carstairs measures, census output area, NHS Board, Electoral Ward and Parliamentary constituency.
Coverage
Spatial
Spatial Coverage:
- United Kingdom
- Scotland
Temporal
Start Date:
01 January 2001
End Date:
08 May 2024
Frequency:
STATIC
Date of Latest Release:
16 June 2024
Date of First Release:
08 October 2024
Temporal Aggregation:
Other
Provenance
Origin
Purpose:
Care
Collection Situation:
- Clinic
- Primary care - Clinic
- Secondary care - Outpatients
- Secondary care - In-patients
Image Contrast:
Not stated
Method of Collection:
EPR
Access and Governance
Usage
Data Use Requirements:
- Collaboration required
- Geographical restriction
- Institution specific restriction
- Not-for-profit organisation use only
Access
Jurisdiction:
Great Britain
Data Controller:
Public Health Scotland
Data Processor:
National Services Scotland
Delivery Lead Time:
Variable
Legal Basis:
Research-specific restrictions
Health Data Access Body:
National Services Scotland;,;Public Health Scotland
Format and Standards
Language:
English
Format:
text/csv
Coding System:
NHS SCOTLAND NATIONAL CODES
Data Distribution
Data Status:
Not available
Distribution:
Scottish National Safe Haven / Trusted Research Environment:
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Brain Health Data Pilot Study,
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/cost-of-services/
Observations
Name
Population Type
Value
Description
Variable Measured
Unit Code
Observation Date
Number of Records
Minimum Typical Age
Maximum Typical Age
Events
290452
Number of Records
Count
08 May 2024
290452
0
150
Persons
219396
People in dataset
count
08 May 2024
219396
0
150
Origin
Name:
Data Catalogue