Version: 1.0.0 | Published: 24 Mar 2026 | Updated: 35 days ago
Summary
Description:
Acute presentations of Atrial Fibrillation with hypertension, atherosclerosis or heart valve problems. Granular care pathways. Demography, multi-morbidity, investigations, interventions and treatments. Serial physiology, blood biomarkers, outcomes.
Access Tier:
Controlled
Contact Point:
Health Theme:
Noncommunicable diseases – metabolic & cardiopulmonary
Health Category:
- Electronic Health Records (EHRs)
- Data from clinical trials, clinical studies & clinical investigations
Number of Unique Individuals:
48820
Documentation
Documentation:
Atrial fibrillation (AF) is a condition of the heart where the heart control rhythm changes from the normal sinus mode to a rapid activity. It is an irregular and often very rapid heart rhythm, known as a type of arrhythmia that can lead to thrombotic events and cardiac dysfunction. AF increases the risk of stroke, heart failure and other heart-related complications.
The cause is not fully understood, but it tends to affect certain groups of people, such as older people and people living with long-term (chronic) conditions such as heart disease, high blood pressure or obesity. Congenital heart disease, pericarditis, cardiomyopathy, physical and mental stress, also contribute to disease pathogenesis.
This highly granular dataset includes patient demographics, key lifestyle and underlying health status information, procedures (catheter ablation, electrical cardioversion), medications (beta-blockers, calcium channel blockers, anticoagulants), risk factors and co-morbidities.
PIONEER geography: The West Midlands (WM) has a population of 5.9 million & includes a diverse ethnic & socio-economic mix.
UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & an expanded 250 ITU bed capacity during COVID. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Scope: Thematic dataset of Atrial Fibrillation and Atrial Flutter. Longitudinal & individually linked, so that the preceding & subsequent health journey can be mapped & healthcare utilisation prior to & after admission understood. The dataset includes highly granular patient demographics, co-morbidities taken from ICD-10 & SNOMED-CT codes. Serial, structured data pertaining to process of care (timings, admissions, wards, attending practitioner change and triage), presenting complaint, assessments, bed moves, consultation, DNAR TEAL, electrocardiogram, events, follow ups, physiology readings (heart rate, BMI, blood pressure, respiratory rate, NEWS2 score, oxygen saturations and clinical frailty scale and others), Lab analysis results (urea, albumin, platelets, potassium, white blood cell count, Covid 19 test and others) microbiology results, procedures, outpatients admissions, surgeries, therapies, ventilation, drug administered and all outcomes. Linked images available (radiographs, CT scans, MRI).
Available supplementary data: Matched controls; ambulance, OMOP data, synthetic data.
Available supplementary support: Analytics, Model build, validation & refinement; A.I.; Data partner support for ETL (extract, transform & load) process, Clinical expertise, Patient & end-user access, Purchaser access, Regulatory requirements, Data-driven trials, “fast screen” services.
Coverage
Spatial
Spatial Coverage:
- United Kingdom
- England
- West Midlands
Temporal
Start Date:
01 January 2018
End Date:
01 January 2022
Frequency:
QUARTERLY
Date of Latest Release:
06 January 2022
Date of First Release:
08 October 2024
Temporal Aggregation:
1 - 10 Years
Provenance
Origin
Purpose:
Care
Collection Situation:
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
Image Contrast:
Not stated
Method of Collection:
EPR
Access and Governance
Usage
Data Use Requirements:
Project specific restriction
Access
Jurisdiction:
England
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Delivery Lead Time:
1-2 months
Legal Basis:
General research use
Health Data Access Body:
This publication uses data from PIONEER, an ethically approved database and
analytical environment (East Midlands Derby Research Ethics 20/EM/0158)
Format and Standards
Language:
English
Format:
SQL
Conforms To:
LOCAL
Coding System:
- SNOMED CT
- OPCS4
- ICD10
Data Distribution
Data Status:
Available
Distribution:
Trusted Research Environments (TRE) are built using Microsoft Azure services and
hosted in the UK to provide research teams a safe, secure and agile environment
which allows users to quickly analyse, interpret and form an enriched view of
primary care information through a range of integrated datasets. Health data
collated from multiple sources is ingested into a secure data lake which will
then allow subsets of data to be made available to research teams on approval of
a data request. Once approved a customer specific TRE is made available with a
standard set of leading analytical tools from Microsoft including Azure
Databricks, Azure Machine Learning, Azure SQL and Azure Synapse (for large-scale
data warehouses). Specific tools can be provided at an additional cost over the
standard platform data access charge and the PIONEER team will work with you to
determine your exact needs. Access to the TRE is managed using the latest
virtual desktop technology to provide a safe and secure end-user experience. By
utilising leading edge design PIONEER are able to create TREs rapidly to enable
us to service any customer requirement.,
www.pioneerdatahub.co.uk/data/data-services-costs/
Observations
Name
Population Type
Value
Description
Variable Measured
Unit Code
Observation Date
Number of Records
Minimum Typical Age
Maximum Typical Age
Persons
48820
48,820 spells diagnosed with atrial fibrillation
Count
06 January 2022
48820
0
150
Origin
Name:
Data Catalogue