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Version: 1.0.0 | Published: 24 Mar 2026 | Updated: 30 days ago

Cancer registration data for CPRD GOLD

Dataset

Summary

Description:
CPRD GOLD linked National Cancer Registration and Analysis Service (NCRAS) cancer registration data contain a record for each notified, registrable tumour, diagnosed or treated in England.
Identifier:
10.48329/541y-nh70
Contact Point:
Health Theme:
Cancer
Health Category:
Electronic Health Records (EHRs)
Number of Unique Individuals:
901965

Documentation

Documentation:
CPRD GOLD linked National Cancer Registration and Analysis Service (NCRAS) cancer registration data contain records for each registrable tumour diagnosed or treated in England, of which the NCRAS has been notified.

Coverage

Spatial

Spatial Coverage:
  • United Kingdom
  • England

Temporal

Start Date:
01 January 1990
End Date:
31 December 2018
Frequency:
QUARTERLY
Date of Latest Release:
06 September 2021
Date of First Release:
08 October 2024
Temporal Aggregation:
1 - 10 Years

Provenance

Origin

Collection Situation:
  • Clinic
  • Secondary care - In-patients
  • Secondary care - Outpatients
Image Contrast:
Not stated
Method of Collection:
EPR

Access and Governance

Usage

Data Use Requirements:
  • Project specific restriction
  • Geographical restriction
  • User specific restriction
  • Time limit on use
  • Institution specific restriction

Access

Jurisdiction:
England
Data Controller:
Clinical Practice Research Datalink (CPRD)
Data Processor:
CPRD
Delivery Lead Time:
Variable
Legal Basis:
General research use, No linkage, Research-specific restrictions, Research use only
Health Data Access Body:
Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)

Format and Standards

Language:
English
Format:
Tab delimited text
Coding System:
  • ICD10
  • ICDO3

Data Distribution

Data Status:
Not available
Distribution:
Access to CPRD data, including UK Primary Care Data, and linked data such as Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research Data Governance (RDG) Process. Independent scientific and patient advice is provided by Expert Review Committees (ERCs) and the Central Advisory Committee (CAC): https://www.cprd.com/research-applications, https://www.cprd.com/pricing

Observations

Name
Population Type
Value
Description
Variable Measured
Unit Code
Observation Date
Number of Records
Minimum Typical Age
Maximum Typical Age
Persons
901965
Number of CPRD GOLD patients matched to a single cancer identifier
Count
05 September 2021
901965
0
115