Version: 1.0.0 | Published: 24 Mar 2026 | Updated: 35 days ago
Summary
Description:
CPRD Aurum linked Quality of Life of Cancer Survivors pilot survey (QOLP) data from survivors of breast, colorectal, prostate cancer or non-Hodgkin’s lymphoma, diagnosed 2006-2010. Note, these data are not routinely available.
Contact Point:
Health Theme:
Cancer
Health Category:
Electronic Health Records (EHRs)
Number of Unique Individuals:
3255865
Documentation
Associated Media:
Documentation:
CPRD Aurum linked Quality of Life of Cancer Survivors in England: Pilot Survey (2011) was commissioned by the Department of Health as part of the National Cancer Survivorship Initiative (NCSI). The survey was conducted by Quality Health in conjunction with three cancer registries in England. The survey measured the overall quality of life of representative samples of cancer survivors with breast, colorectal cancer, prostate cancer and non-Hodgkin’s lymphoma (NHL) diagnosed during July 2006 - July 2010. Quality of life was assessed at four different time points after diagnosis at approximately one, two, three or five years. As this was a pilot survey, numbers are small and data governance issues will need to be carefully considered on a study by study basis. Outcome items in the survey are made up of Euroqol 5-level (EQ-5D), Functional Assessment of Cancer Therapy (FACT), and Social Difficulties Inventory (SDI) items.
Coverage
Spatial
Spatial Coverage:
- United Kingdom
- England
Temporal
Start Date:
07 January 2006
End Date:
31 July 2010
Frequency:
QUARTERLY
Date of Latest Release:
11 December 2020
Date of First Release:
08 October 2024
Temporal Aggregation:
Other
Provenance
Origin
Collection Situation:
- Secondary care - In-patients
- Other
Image Contrast:
Not stated
Method of Collection:
Electronic survey
Access and Governance
Usage
Data Use Requirements:
- Project specific restriction
- Geographical restriction
- User specific restriction
- Time limit on use
- Institution specific restriction
Access
Access Rights:
Jurisdiction:
England
Data Controller:
Clinical Practice Research Datalink (CPRD)
Data Processor:
CPRD
Delivery Lead Time:
Variable
Legal Basis:
General research use, No linkage, Research-specific restrictions, Research use
only
Health Data Access Body:
Public Health England (PHE) via the National Cancer Registration and Analysis
Service (NCRAS)
Format and Standards
Language:
English
Format:
Tab delimited text
Coding System:
OTHER
Data Distribution
Data Status:
Not available
Distribution:
Access to CPRD data, including UK Primary Care Data, and linked data such as
Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research
Data Governance (RDG) Process. Independent scientific and patient advice is
provided by Expert Review Committees (ERCs) and the Central Advisory Committee
(CAC): https://www.cprd.com/research-applications, https://www.cprd.com/pricing
Observations
Name
Population Type
Value
Description
Variable Measured
Unit Code
Observation Date
Number of Records
Minimum Typical Age
Maximum Typical Age
Persons
3255865
Number of CPRD Aurum patients matched to a single cancer identifier
Count
06 September 2021
3255865
0
115
Origin
Name:
Data Catalogue