Version: 1.0.0 | Published: 24 Mar 2026 | Updated: 35 days ago
Summary
Description:
The oncology database was established in 2019 building on 40+ years of data collection across the region of the South East Scotland Cancer Network. The database holds data on diagnosis, treatment and outcomes of patients undergoing care within the region.
Access Tier:
Safeguarded
Contact Point:
Health Theme:
Cancer
Health Category:
Electronic Health Records (EHRs)
Number of Unique Individuals:
163788
Documentation
Associated Media:
Documentation:
SESCD oncology data is recorded and curated by a dedicated team of clinical coders using paper-based patient case notes, electronic patient records, Scottish morbidity registers, and secondary healthcare databases. In addition, there are a number of automatic feeds from various national, regional and bespoke databases and EPRs which are quality checked by the coding team. Clinical expertise is provided by a dedicated team of clinical and research professionals.
Coverage
Spatial
Spatial Coverage:
- United Kingdom
- Scotland
- City of Edinburgh
- East Lothian
- Midlothian
- West Lothian
- Dumfries and Galloway
- Scottish Borders
- Fife
Temporal
Start Date:
01 January 1974
Frequency:
CONTINUOUS
Date of First Release:
08 October 2024
Temporal Aggregation:
Continuous
Provenance
Origin
Collection Situation:
- Clinic
- Secondary care - Outpatients
- Secondary care - In-patients
- Services
- Prescribing - Community pharmacy
- Other
Image Contrast:
Not stated
Access and Governance
Usage
Data Use Requirements:
Project specific restriction
Access
Access Rights:
Jurisdiction:
Scotland
Data Controller:
NHS Lothian
Data Processor:
NHS Lothian
Delivery Lead Time:
2-4 weeks
Legal Basis:
Project-specific restrictions, Research-specific restrictions
Health Data Access Body:
NHS Lothian
Format and Standards
Language:
English
Format:
- application/sql
- text/csv
Coding System:
- LOCAL
- OPCS4
- ICD10
- ICD10CM
- ICDO3
Data Distribution
Data Status:
Not available
Distribution:
Researchers define their cohort and time period and select from a list of
available data variables. Analysts will retrieve the data and make it available
as an Excel file., Available on request
Observations
Name
Population Type
Value
Description
Variable Measured
Unit Code
Observation Date
Number of Records
Minimum Typical Age
Maximum Typical Age
Persons
163788
Cancer patients in the South East of Scotland
Count
24 August 2022
163788
0
150
Origin
Name:
Data Catalogue