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Version: 1.0.0 | Published: 24 Mar 2026 | Updated: 35 days ago

NIHR Midlands ARC Dataset: Outcomes from out-of-hospital cardiac arrest

Dataset

Summary

Description:
A highly granular dataset of 1588 Cardiac arrests curated by PIONEER in collaboration with West Midlands Ambulance Service (WMAS), including demography, initial presentation, serial physiology, investigations, treatment and outcomes.
Access Tier:
Controlled
Contact Point:
Health Category:
  • Electronic Health Records (EHRs)
  • Data on factors impacting on health, including socio-economic, environmental & behavioural determinants of health
Number of Unique Individuals:
1588

Documentation

Documentation:
Resuscitation to Recovery is the national framework to improve care of people with Out of hospital cardiac arrests (OHCA). Despite this, survival rates continue to be around 10%. Recently an OHCA care pathway been developed by the British Cardiovascular Interventional Society, aiming to reduce unwarranted variation in interventional cardiovascular practice for OHCA. However, little research has tracked the care OHCA patients receive along the whole pathway. To support a better understanding of OHCA care pathways, PIONEER, working with the NIHR Midlands Applied Research Collaboration and West Midlands Ambulance Service, has curated a highly granular dataset of 1588 OHCA events. The data includes demography, comorbidities, initial presentation, serial physiology, assessments, treatment provided both before and after West Midlands Ambulance Service arrival, onward hospital investigations, management and outcomes, including future healthcare use. The current dataset includes OHCA from 2018 to 2022 but can be expanded to assess other timelines of interest. Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”. Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact pioneer@uhb.nhs.uk or visit www.pioneerdatahub.co.uk for more details. Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements. Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.

Coverage

Temporal

Start Date:
01 April 2018
End Date:
31 December 2022
Frequency:
QUARTERLY
Date of Latest Release:
31 October 2024
Date of First Release:
31 October 2024
Temporal Aggregation:
0 - 6 Months

Provenance

Origin

Purpose:
Care
Collection Situation:
  • Secondary care - Accident and Emergency
  • Secondary care - In-patients
Image Contrast:
Not stated
Method of Collection:
EPR

Access and Governance

Usage

Data Use Requirements:
Project specific restriction

Access

Jurisdiction:
England
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Data Processor:
NOT APPLICABLE
Delivery Lead Time:
1-2 months
Legal Basis:
General research use
Health Data Access Body:
This publication uses data from PIONEER, an ethically approved database and analytical environment (East Midlands Derby Research Ethics 20/EM/0158)

Format and Standards

Language:
English
Format:
  • applications
  • sql
Conforms To:
LOCAL
Coding System:
  • ICD10
  • SNOMED CT
  • OPCS4

Data Distribution

Data Status:
Available
Distribution:
Trusted Research Environments (TRE) are built using Microsoft Azure services and hosted in the UK to provide research teams a safe, secure and agile environment which allows users to quickly analyse, interpret and form an enriched view of primary care information through a range of integrated datasets. Health data collated from multiple sources is ingested into a secure data lake which will then allow subsets of data to be made available to research teams on approval of a data request. Once approved a customer specific TRE is made available with a standard set of leading analytical tools from Microsoft including Azure Databricks, Azure Machine Learning, Azure SQL and Azure Synapse (for large-scale data warehouses). Specific tools can be provided at an additional cost over the standard platform data access charge and the PIONEER team will work with you to determine your exact needs. Access to the TRE is managed using the latest virtual desktop technology to provide a safe and secure end-user experience. By utilising leading edge design PIONEER are able to create TREs rapidly to enable us to service any customer requirement., www.pioneerdatahub.co.uk/data/data-services-costs/

Observations

Name
Population Type
Value
Description
Variable Measured
Unit Code
Observation Date
Number of Records
Minimum Typical Age
Maximum Typical Age
Persons
1588
1588 Cardiac arrest spells conveyed by WMAS
Count
23 September 2024
1588
18
150